Parkinson and me
I record here the history of my Parkinson's Disease and its development
Consultations First letter Having been diagnosed with Essential Tremor some years before, I was referred to Dr Turner in October 2012. This is Dr Turner's letter recording her preliminary diagnosis and proposals
Second letter Having by then tried both Propranolol and then subsequently Primidone for the tremor, and attended Dr Kemp's DaT scanning facility (see below) I had a second consultation with Dr Turner in February 2013. This is the letter recording her conclusions and recommendations.
Second consultation Here is an edited recording of a consultation with Dr Gill Turner on 1 February 2013, taken with Dr Turner's permission
Third letter This is the letter written by Dr Butchart after our meeting on 13 September 2013.
Third consultation Here is an edited recording of a consultation with Dr Joe Butchart on 13 September 2013, taken with his permission
Fourth letter This is the letter written by Dr Zeeshan Arfeen after our meeting on 11 April 2014.
Frankel letter 1 This is the letter written by Dr Jonathan Frankel after the meeting on 20 August 2015. I had taken two others with me: my brother-in-law known to the family as 'Uncle Richard' (now aka 'Jaguar Albery') and Diana — whilst George stayed in her Merc 4x4 till we got out onto the South Downs Way later
Progress email Dr Frankel had asked me to keep him informed about my progress. This is my email to his secretary Janet
Frankel letter 2 This is the letter written by Dr Frankel in response to my email. I hope to rely on this to get my GP practice to set me up with my preferred neurologist Dr Alice Manson
Furby letter 1 This is the letter written by Dr Julian Furby following my consultation with him at St May's Hospital on 29 December 2015
Louise Long meeting 1 Consultation with Parkinson's Specialist Nurse Louise Long on Tuesday 15 March 2015
PRI Discharge letter Discharge letter by Dr John Harper dated 19 December 2018 following two-day stay in Perth Royal Infirmary
PRI Clinic letter Second letter by Dr John Harper dated 10 January 2019 following follow-up meeting in clinic on 9 January 2019
Furby letter 2 Letter by Dr Julian Furby dated 14 February 2019 following scheduled meeting in clinic on 12 February 2019
Ghosh letter 1 Clinic letter following consultation with Dr Boyd Ghosh on 26 February 2019
Jackie meeting 1 Record of consultation with neurological specialist Jackie Chamberlain on 18 June 2019 in Salisbury Central Clinic
History History of observations since February 2019
DaT Scan Images Four putamen images, taken on 21 December 2012
Report The report by Dr Paul Kemp following the scan
PD Dancing Video In 2013, Carolyn Fitton, Sophia Hulbert and colleagues from Southampton University ran a Project aiming to find out how effective dancing might be in alleviating the symptoms of Parkinson's disease. Particularly, attention in the study focused on turning and balance. This video shows how a group of us learned to Dance at the DM Dance Centre in Southampton
Academic report Here we have the application for further research funding. The description has some useful things to say about the disease itself, its range of possible symptoms, and ideas for alleviating its effects
Contact email john@johndexter.co.uk
phone 07812 635953
home page www.johndexter.co.uk