Dear Friends
Many of our friends will have heard our sad news — that Patti is seriously unwell. This bulletin, written on Sunday 12 January 2014, will bring you up to date.
The family were most concerned that radiotherapy could not start until 20 January. Since it appeared to us that the tumour had started recently and grown rapidly, a delay of three weeks would mean loss of valuable time in arresting its further growth. Dr Sharpe was due back on 30 December so we entered a combined request for an earlier date. On his return Doctor Sharpe expressed his horror at finding out about the delay and determined that he would find some way of starting Patti's treatment a fortnight earlier.
The intervening week was an anxious time, but on Monday 6 January — Epiphany — Patti went in for her first treatment in the Oncology Centre at Southampton General Hospital.
Meanwhile the family continued a frenzied series of meetings with our medical support team: GPs Simon Sherwin, Nikki Sheppard and Patti's own doctor Lesley Mayo; Penny, an occupational therapist; our district nursing team led by Diana; Maria from the Oakhaven Hospice in Lymington, and Fran from Oakhaven's Hospice-at-Home Service.
On Friday 3 January Anna and John took Patti to see Oakhaven, which none of us had visited before. Patti met one of her golfing friends, Margaret Atkins, working as a volunteer on the reception desk. Maybe it was the surprise of seeing Margaret, but Patti's knees gave way; immediately three nurses caught her and settled her into a wheelchair. Fran took over and wheeled Patti round the hospice. Patti found the place peaceful and friendly. At three o'clock we all had tea with the day patients and met an old friend, Denis Skillicorn, who volunteers there once a week. It had been a full but comforting day.
The following day we moved one of our twin beds downstairs into the music room for Patti, and a mattress from the loft was found for me. In the event the pair of us have slept downstairs only once so far.
Patti's radiotherapy began on Monday 6 January. After the first session in the hospital we explored the Macmillan drop-in centre next to the hospital oncology department. The centre is a peaceful place, offering cups of tea and a variety of services; we were met on that Monday by Wendy, a volunteer, and on Tuesday by Ray, another volunteer. Everyone was very kind and understanding. Patti signed up for reflexology that Tuesday and aromatherapy on the final treatment day, Friday 17th.
The radiotherapy went well. By the end of the first week, on 10 January — after five treatments — Patti was showing definite signs of improvement. Caroline and Anna accompanied Patti for her interim consultation with Dr Sharpe. Patti had asked to see her CT and MRI scans; that was arranged and copies provided on DVD to take home.
All this time Patti wanted to be as active as possible. Our first free day was yesterday, Saturday 11 January. The weather was fine: a cloudless sky with sun forecast all day. So we took the ferry to Yarmouth: five adults, two dogs and a picnic lunch. From Yarmouth we drove to the Needles and continued up the National Trust road (No Cars)! to the top of West Down and parked on the grass high above the Needles Lighthouse. Patti walked with the rest of us all the way to the Tennyson Monument at the highest point of Tennyson Down — a distance of about a mile and a half. She was amazed and delighted to have made that objective in perfect visibility on such a glorious afternoon. We could see Portsmouth to the east and Ballard Down above Swanage to the west. As the sun set, giving way to a waxing gibbous moon, Dan wheeled Patti in our trusty Red Cross wheelchair back to the car. We returned on the five past six ferry to a sumptuous family dinner in front of a roaring fire the public bar of the East End Arms.